dialysis

Amy’s Story of Resilience, Recovery, and Second Chances

At first glance, Amy’s bright smile and determined spirit don’t reveal the extraordinary journey she has traveled to get here.

Amy is a proud mother of two boys, a dialysis patient, a college student, a recovery advocate, and a woman rebuilding her life one step at a time, quite literally.

Years ago, after receiving a kidney transplant, Amy experienced a series of personal struggles that eventually led to addiction, declining health, and the heartbreaking loss of her transplanted kidney. Ashamed and overwhelmed, she stopped attending medical appointments and drifted further from the support she needed.

“I had given up on myself,” Amy shared honestly.

Her health deteriorated rapidly. Eventually, severe infection and sepsis led to the amputation of both of her legs above the knee. Doctors told her she might not survive.

But Amy did survive.

What followed was not an overnight transformation, but a journey of recovery. Supported by her family, healthcare providers, her dialysis team at Puget Sound Kidney Centers, and her own fierce determination, Amy committed herself to rebuilding her life.

She returned to dialysis consistently. She learned how to navigate life with prosthetic legs. She taught herself to walk again in just six months, far sooner than expected. She learned to drive independently and began setting goals for her future.

Today, Amy is thriving in ways she once had not thought possible.

She is pursuing college courses in addiction studies and human services, making the honor roll along the way. She has completed recovery coach training and now leads a women’s support group for individuals navigating recovery, homelessness, domestic violence, and other life challenges.

“I want people to know recovery is possible,” Amy said. “You can lose everything and still rebuild your life.”

Throughout her journey, Amy says dialysis care and the encouragement of those around her helped restore not only her health, but her confidence and sense of purpose.

Her story is a powerful reminder that healing is about more than medical treatment. It is about compassion, dignity, support, and believing in people even when they struggle to believe in themselves.

Today, Amy continues working toward another kidney transplant while raising her sons and helping others find hope in their own journeys.

And perhaps most importantly, she no longer defines herself by what she lost but by everything she fought to regain.

Wrapped in Hope: Quilts that Bring Comfort and Connection to Whidbey Island Patients

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At Puget Sound Kidney Centers, care goes far beyond treatment. Sometimes, it begins with something as simple as a forgotten blanket and grows into something extraordinary.

When Lisa T, Administrative Assistant at our Whidbey Island clinic, first joined PSKC, she was tasked with cleaning out patient lockers. Inside, she found a beautiful pineapple quilt, along with several fleece blankets. She took them home, washed them, and gave most away but something told her to hold onto the quilt.

A few weeks later, a nurse asked if there was an extra blanket for a patient who had forgotten theirs. Lisa knew immediately she had saved that quilt for a reason.

The pineapple quilt became a shared comfort, washed and available for any patient who needed warmth during treatment. And stitched onto that quilt was a small tag: Quilters on the Rock Whidbey Island.

For months, Lisa thought about reaching out. One day, she mentioned the idea to Pauline, a PSKC patient, who smiled and encouraged her: “They love doing it, and need something to do.” They both laughed.  Lisa sent an email. The response was immediate and enthusiastic. “This sounds like something we can make happen.”

What happened next was more than anyone expected.

After meeting with members of the quilting group, one comment changed everything: “Well, they all deserve a quilt.”  With that, Quilters on the Rock committed not only to providing quilts for new patients but also for every current patient at the PSKC Whidbey Island clinic, which is about 44 patients.

Soon after, the first round of more than 20 handmade quilts arrived at the clinic.

Each one is unique, created with care, creativity, and collaboration. Some are made start to finish by one quilter, while others are assembled in group “play days,” where members come together to piece, quilt, and bind them. Every quilt represents hours of work and a deep desire to give back.

When the quilts were ready to be shared, Pauline, the patient who first encouraged the connection, was invited to choose the very first one.

As she entered the room, her face lit up. Surrounded by color, texture, and craftsmanship, she took it all in with wonder. And then, in a moment that felt meant to be, she began talking about her dear friend Leon, a quilter.

As the conversation unfolded, it became clear: Leon was connected to the very same quilting community standing in the room.

A full-circle moment. One of those quiet, powerful reminders that kindness has a way of finding its way exactly where it’s needed.

“It warms my heart to see all this,” Pauline shared, holding the quilt she had chosen.

For patients receiving dialysis, often spending 3-4 hours in treatment 3 times each week, these quilts offer more than warmth. They offer dignity, comfort, and connection.

Lisa now carefully washes each quilt before it is given, just as she did with that very first one. And with every new patient who receives a quilt, the impact continues to grow.

“It’s such a great feeling,” Lisa shared. “Patients are truly humbled by the gesture.”

Because of the generosity of Quilters on the Rock and supporters like you, our patients are not only cared for, they are wrapped in compassion, community, and hope.

Sometimes, the smallest moments, like saving a quilt, turn into something much bigger than we ever imagined.

Quilters on the Rock

Mr. & Mrs. Hollywood: Finding Freedom, Faith, and Family Through Home Dialysis

At Puget Sound Kidney Centers’ Port Townsend clinic, Jerry and CeCe are known affectionately as “Mr. and Mrs. Hollywood.” They arrive at each monthly appointment with a spread of food for the staff, warm smiles, and a deep sense of gratitude despite a journey with kidney disease that began in fear and uncertainty.

“We went in pretty scared,” Jerry recalls. “But from the very beginning, we had the absolute best care. They made me feel comfortable and treated me with such kindness all the way through.”  Jerry and CeCe give high praise to all of the PSKC staff they have worked with, from Port Townsend clinic’s medical director Dr. Gill, to their “beautiful angel Joel, and the wonderful Nurse Vickie with her beautiful smile that greets us every time.”

The happily retired couple, former Seattleites who spent 30 years in Los Angeles where Jerry was chef/owner of a restaurant that CeCe calls “the best on the planet”, returned to Washington to be closer to family. Not long after, Jerry’s learned he needed to begin dialysis. What followed was a life-changing transition to peritoneal dialysis (PD) at home, with CeCe as his dedicated care partner.

“CeCe really takes care of me,” Jerry says. “She handles so much of what I need to do to be on this system.”

With her background as a nurse’s aide in the Air Force and a lifelong exposure to healthcare through her mother who was a newborn ICU nurse, CeCe embraced the complex training. “When we got the nighttime PD machine, it was God’s gift,” she says. “It gave him his strength back.”

After a difficult period on in-center hemodialysis during a surgical recovery, the difference was unmistakable. “With home PD, I really have no bad effects,” Jerry shares. “It gave me my life back.”

Their journey has not been without challenges including supply disruptions, power outages, and the long, uncertain wait for a transplant. In every moment, the PSKC team has been there. They still talk about the night a staff member, Joel, drove through a blizzard to deliver warm dialysis solution so Jerry could safely complete his treatment.

“I will never forget that,” CeCe says. “I can call anytime, and they are there for us.”

For staff, the impact is mutual. “They are supportive and so thankful for their care,” says nurse Vickie. “They both encouraged me to finish school, and it gave me the strength to finish.

Today, Jerry is active on the transplant list and looking toward the future with hope. “On a good day, I feel it’s coming my way,” he says.

To PSKC donors, CeCe offers a simple message: “Your money is well spent. This is the best organization on the planet.”

And Jerry adds, “It’s the best family you could ask for at a time like this.”

Preparing for Dialysis: Seven Key Steps

Beginning dialysis may seem overwhelming, but learning about your treatment options and preparing in advance can give you a greater sense of control. Here are seven essential steps to help you get ready and feel more confident about managing life with dialysis.

1. Find a kidney specialist. If you don’t already have one, find a nephrologist—a doctor specializing in kidney care. Your nephrologist will guide you through your treatment options and work with other members of your care team to oversee your care.

2. Explore treatment options. Dialysis comes in different forms, including home dialysis and in-center dialysis. Learn about the pros and cons of each, then discuss with your doctor to determine which type of dialysis is right for you.

3. Meet your care team. Your nephrologist isn’t the only specialist who is there to support you through dialysis–there’s an entire team of people here for you, including nurses, dialysis technicians, dietitians, social workers, and more. Learn more about your care team and see how each will help you live your very best life with kidney disease.

4. Educate yourself about kidney health. Knowledge is power! The more we understand, the less fear we feel. Make use of the resources available at your kidney center, including classes on kidney health, treatment options, and the kidney diet. Staying informed will help you feel more confident and in control of your treatment.

5. Plan your dialysis schedule. Dialysis takes time, but it doesn’t have to take over your day. Work with your dialysis team to create a schedule that allows you to continue working, staying active, and enjoying your hobbies.

6. Find your community. Don’t think you need to go at this alone! With over half a million people on dialysis in the U.S. alone, there’s a vast community out there with valuable insights on treatment and kidney disease. Explore blogs, join online forums, or ask your center about local support groups. Connecting with others—whether online or in person—can make your transition to dialysis much easier.

7. Advocate for yourself. You know yourself and your body best. If something isn’t working for you, speak up. Talk to your nephrologist or care team about adjustments to your treatment plan that could help you feel better.

Remember, you aren’t alone on this journey! By planning ahead, collaborating with your care team, and connecting with others who share your experience, you can ease the transition to dialysis and continue living a fulfilling life.

Our Favorite Activities To Do While on Dialysis

For most people on dialysis at a clinic, treatment time is four to five hours—which can seem long and daunting. It’s natural to feel bored, tired, antsy, and irritable during dialysis. One of the best ways to combat these negative feelings is to make a plan before each treatment on how to use your time. Yes, you are in that chair for a long time. But there are plenty of activities you can do to keep yourself entertained, to feel productive, and to walk away after each treatment feeling like you used that time in the best way.

Here are some of our favorite ways to pass the time during dialysis.

Relax and Unwind

  1. Watch TV or movies: Bring a tablet, laptop or your smartphone to watch an episode of your favorite show, or a movie or documentary.
  2. Listen to music or podcasts: Use headphones to listen to music, podcasts or audiobooks.
  3. Read: Bring books, magazines or a newspaper.
  4. Play games: Use a smartphone, tablet or portable gaming device to play games. Or, go old-fashioned and bring a book of sudoku or crossword puzzles to keep your mind alert.
  5. Practice meditation or mindfulness: Practice relaxation techniques, deep breathing, or mindfulness exercises, or close your eyes and try to catch up on sleep. All of these activities can help pass the time and improve mental health.

Learn Something New

  1. Educate yourself: Take online courses or watch educational videos on platforms like YouTube, Udemy or Coursera.
  2. Learn a language: Use apps like Duolingo or Rosetta Stone to try a language you’ve always wanted to learn.
  3. Goal plan: Use a notebook or app to set personal goals or make plans for the future. You could even meal plan, using some of our kidney-friendly recipes!

Connect With Others

  1. Call or video chat: Catch up with friends or family.
  2. Write letters or emails: Everyone loves mail! Connect with friends and family by penning a thoughtful letter or email.

Get Creative

  1. Draw or sketch: Bring a sketchpad and pencils and get creative!
  2. Journal or write: Keep a diary, write stories or work on personal writing projects.
  3. Crafting: Small, portable crafts like knitting or crocheting is a great way to pass the time.

Be Productive

  1. Work remotely: If your job allows it, bring your laptop or tablet to catch-up on emails or other tasks.
  2. Organize finances: Manage your budget—not necessarily the most fun task for a lot of us but one that will help you stay organized and on track, financially-speaking.

Try Simple Exercises

  1. Hand exercises: Simple hand or finger exercises can improve circulation and reduce stiffness.
  2. Stretching (with approval): Perform subtle movements to stretch your legs or arms without disturbing the equipment.

Other Tips for Successful Dialysis Sessions

  • Comfort: Bring a blanket, pillow or other items to stay warm and comfortable during each treatment.
  • Hydration and snacks: Ask your Puget Sound Kidney Centers care team about eating or drinking during dialysis.
  • Pre-approval: Your care team is always there and ready to answer any questions you may have, as well as making sure you are comfortable throughout your treatment. Check in with the team if you need anything at all.

What activities do you like to do during dialysis? Will you be trying any of these? Regardless of which activities you choose, you’ll likely get more out of each session and feel better about the time spent if you make a plan on how to use it. Get planning and let us know how it goes on Instagram, Facebook and Twitter!

 

Dialysis treatment time—every minute counts! A message from our CMO.

For most in-center patients, hemodialysis means three treatments per week, each four hours in duration. The weekly total of 12 hours represents a small fraction (less than 10%) of the round-the-clock work normally performed by healthy kidneys to continuously clean the blood. Removing the toxins and excess fluid that accumulate in-between treatments requires maximizing every minute of your treatment time.

It is not uncommon that patients may wish to come off dialysis early for a variety of reasons—fatigue, muscle cramping, even boredom, to name a few. While they may not feel any immediate symptoms, shortening treatment time can have a negative long-term impact on overall health. Coming off early once can easily become a recurring pattern of behavior.

Raghu Durvasula, MD, MHA
Chief Medical Officer

Finishing dialysis even five minutes earlier than prescribed would result in 13 hours of missed dialysis time over the course of the year, the equivalent of more than three skipped treatments!

As a result, wastes inevitably begin to accumulate leading to patients feeling unwell, with reduced energy, poor appetite, chronic nausea, shortness of breath, and worsening blood pressure control.

Furthermore, a reduction in treatment time is known to be associated with increased risk of emergency department visits and hospital admissions, while ultimately reducing long-term survival.

If you are having difficulty completing your full treatment, be sure to discuss it with your care team. It is important to figure out why, then find solutions that could help you get through the entire treatment as prescribed.

Every minute counts, so don’t cut yourself short. Staying well-dialyzed will keep you healthy and energetic, so that you are better able to enjoy those activities and life pursuits that matter most to you!

Kidney care comes full circle

Jacee Numbrado, dialysis tech at the Cogen Center in Bremerton.

At the young age of 18, while living in the Philippines, Jacee Numbrado was diagnosed with glomerular nephritis, resulting in end-stage kidney disease. He had been experiencing gouty arthritis symptoms for a week when he awoke one night with such intense pain, he was taken to the hospital where lab studies revealed a high creatinine level. He was given the choice of treating his condition with medication or starting dialysis. Jacee opted for medication which sadly did not help— he ended up going on dialysis two times a week while living in the Philippines.

Jacee and his family moved to the United States in 2019; he started dialysis at Olympic Peninsula Kidney Center (now Puget Sound Kidney Centers-Cogen Bremerton) that June. Soon after, with the support of clinic staff—who Jacee says “were always positive, made him feel comfortable and hopeful”—Jacee decided to pursue a kidney transplant.

In August 2021, Jacee received a kidney transplant at Virginia Mason. He did well during his weeklong stay in the hospital and was then released for observation at home for a month.

In July 2022, Jacee was hired as a dialysis technician at Puget Sound Kidney Centers-Cogen Bremerton. He is now helping provide care where he himself received care—a true full circle. Jacee wants to bring back what he received as a patient—hope and positivity.

“Every day is a new day and the staff at PSKC made this possible for me,” he says, “so I hope to do the same for patients I care for.”

Our Lakewood center opens its doors, a beautiful new facility to serve Pierce County patients

About the state-of-the-art center

On Oct. 3, 2019, over 100 people came out to celebrate the opening of our new dialysis center in Lakewood, WA. Guests enjoyed tours and refreshments at this beautiful facility. At full capacity, this new 29-station dialysis center will accommodate up to 174 in-center dialysis patients. The center, designed by Botesch, Nash & Hall, was created to be a warm, welcoming and comfortable environment for patients and visitors.

“This new facility reflects our ongoing desire to provide a high quality and beautiful care environment for our patients, all in an effort to enhance their quality of life,” says Harold Kelly, PSKC president and CEO.

The 18,150 square foot facility includes three isolation rooms and a permanent bed for patients who need to lie down during dialysis. The facility will house a specialized training area for home dialysis patients, and the center will host free kidney health education classes for patients and the broader community.

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Left: Harold Kelly, president and CEO at PSKC, addresses the crowd at the opening ceremony. Right: Our Lakewood staff are ready to serve our new patients in the area.

Introducing our Lakewood medical director

Dr. Ramon Anel has practiced for over 24 years, specializing in critical care medicine and nephrology. He graduated from the University of the Philippines Manila College of Medicine and completed his residency at Advocate Illinois Masonic Medical Center in Chicago. Dr. Anel currently practices with the Providence Medical Group in Olympia.

Medical directors are an important part of the Puget Sound Kidney Centers team as they are responsible for assuring the safety and quality of care patients receive at each unit. They are also responsible for implementing the quality advancement projects that assure PSKC continues to identify areas for improvement and innovation. In this capacity, Dr. Anel serves along with a team of professionals that include nurses, technicians, renal dietitians and social workers.

“Dr. Anel has been instrumental in introducing PSKC to the Lakewood community,” says Jenni Tyner, director of nursing at PSKC. “We are delighted to partner with him as we serve the dialysis community of Lakewood.”

Welcome, Dr. Anel, and thank you for your leadership.

Puget Sound Kidney Centers has seven dialysis centers in Washington state. See where we’re located and learn more about us. You can even follow us on social media – we’re on Facebook, Instagram, Twitter and Pinterest.

Living Life to the Fullest

Musician, actress, singer, poet, activist, student and social worker are all titles held by Andrea Skywalker over the course of her extraordinary life. Born in Germany to a German mother and a Black American/Cherokee father, she credits her father’s military background and her mother’s meticulous nature with instilling in her a discipline and drive that would help her pursue her many interests. She has traveled extensively, and, with a degree in Human Services, she has enjoyed a long career as a social worker for the State of Washington. During her tenure as a social worker, she worked with victims of domestic violence, seniors and other people in need. “I like helping people who can’t help themselves.” She adds, “I want to leave something positive and beautiful in this world to promote unity.” Andrea enjoys the performing arts and has appeared on the stage and screen as a singer, musician and actress. She continues to perform at local venues.

In 1999 she suffered a major stroke which left her in the hospital for 2 months. She had to re-learn how to walk, talk and function, and her determination would be essential in her rehabilitation efforts, “As soon as I could walk, I went back to work. Never give up” she advises based on her own experience. When her doctor told her six years ago that her kidney function was declining and she should prepare for dialysis, Andrea was adamant that dialysis was not for her and she managed to keep her kidneys functioning for six more years. Eventually her kidneys would fail and she was faced with the ultimate choice. At this point, she did choose to continue living with the aid of dialysis treatments; “I decided I’m too busy to die.” Just a few months after beginning dialysis Andrea celebrated the debut of her first book, entitled “The World As I See It.” Now Andrea has just completed a second book and will soon be recording a music CD. She shares, “Even though dialysis is time consuming and takes up three days of each week, I often think about where I’d be without the dialysis. I choose to be grateful and to be happy that I’m still alive.

Enjoy a poem from Andrea’s new book, “The World As I See It”:

I’M SUPPOSED TO LIVE
I GOT THINGS TO GIVE
I GOT PLACES TO SEE
DON’T YA KNOW
I GOT PLACES TO GO
IN WIND – RAIN – AND SNOW
AND THE CLOCK KEEPS TICKING
REAL SLOW

WHEN I WAS 63
I WAS TIRED AND CRANKY
AND MY PRESSURE
WAS WAY TOO HIGH
AS MY KIDNEYS WERE FAILING
AND I LAY AILING
I WOKE UP AND SAID
NO – I’M NOT GOING TO DIE

I’M SO LUCKY I GET A SECOND CHANCE
TO WALK AND TALK
AND LEARN HOW TO DANCE
MAYBE FIND A LITTLE ROMANCE
TO APPRECIATE EACH MOMENT AND SAY
HOW ARE YOU TODAY

LET’S TAKE A CHANCE
AND DANCE THE NIGHT AWAY
CAUSE I’M SUPPOSED TO LIVE

By Andrea Skywalker @2017

Top ten tips for people starting dialysis

Dialysis can be daunting – learning more about it and understanding your options might help you feel calmer and better prepared. Here are ten ways to get ready for dialysis.

1. Find a kidney doctor if you don’t already have one. A nephrologist — a kidney doctor — is an expert on kidney care. If you’re in the Pacific Northwest, use our search tool to find a nephrologist near you.

2. Learn about your treatment options. If you need dialysis, there are different options that might work for you. Learn about home dialysis and in-center dialysis, then talk to your kidney doctor about what could work best for you.

3. Meet with a nutritionist at your dialysis center to discuss the kidney diet. If you need dialysis, you’ll likely benefit from changing your diet. Eating the right foods while on dialysis will help you feel better.

4. Take a class about kidney health. There are many resources out there to help you learn how to feel good while on dialysis. Sign up for our free classes to understand your treatment options, how diet and exercise can make you feel better, and other ways to help slow the progression of your kidney disease.

5. Try to create a dialysis schedule around work and regularly scheduled activities. Dialysis is time-consuming but it doesn’t have to mean you’ll miss out on all your usual activities. Work with your dialysis care team to find a treatment schedule that helps you stay involved with work and your community.

6. Talk to the care team at your dialysis clinic about insurance. Speak with members of your dialysis clinic’s financial team to learn about Medicare and what kidney care it covers. 

7. Talk to someone who has been on dialysis. One of the best ways to understand what dialysis is like is to chat with people who are also on it. While undergoing treatment, talk to others who are dialyzing to get tips from them. Or, meet up with someone from The Road Back to Life, a group of people with kidney disease who have been on dialysis or received a kidney transplant.

8. Find recipes that follow your kidney diet and stock up on those foods. There are some absolutely delicious foods that align with the kidney diet. Check out our kidney-friendly recipes for some to try.

9. Make an exercise plan with your doctor. Fitness is important for everyone, including people on dialysis. Regular exercise — even short walks or stretching — will help you feel better and could help slow your kidney disease down. Work with your doctor to create a fitness plan that works for you.

10. Be your own advocate. No one knows you better than you. If something isn’t going well for you, speak up. Talk to your nephrologist or the kidney care team at your dialysis center to see how your care plan could change to make you feel better.

 

Although adjusting to being on dialysis can be difficult, there’s a community of people here to help. You’re not alone with your disease — talking with others and sharing your own experiences can help. Search, and share your own story, with #MyKidneyStory on Facebook, Instagram and Twitter.